Primary care records are needed to understand the person who has died. Records are also needed to understand if there are lessons to be learned from their death. A LeDeR reviewer needs to access primary care records and, or talk with the GP about the person who died.

In developing the new LeDeR policy we have listened to GPs. To reduce the burden on GP practices we have recommended that local systems use smartcards to allow reviewers to access patient records. This means that when someone with a learning disability or an adult with a diagnosis of autism dies, you will be asked to give your permission for the LeDeR reviewer to access the clinical notes on your system for that individual for a limited period.

Where smartcards are not in place locally, your practice staff may need to share the patient notes directly with the LeDeR reviewer, in the same way as LeDeR has worked previously. In either case, instructions will be provided by the LeDeR review team. You can offer to have a detailed telephone conversation with the reviewer instead.

GP practices should always notify LeDeR about the death of any patient registered with the practice who has a learning disability or who is autistic. Notification takes moments and is via a simple online notification form. Further information about LeDeR can be found online in the national LeDeR policy and on the national LeDeR website.