Data/Research
Useful data and research on epilepsy for health and care professionals.
Data/Research
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Epilepsy Research UK
Organisation: Epilepsy Research UK
Type: Website
Date published: Regularly updated
Description: Epilepsy Research UK is a charity dedicated to driving and enabling research into epilepsy.
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Epilepsy12 National Organisational Audit Report 2018
Organisation: National Clinical Audit of Seizures and Epilepsies for Children and Young People
Type: Audit/Statistics
Date published: April 2018
Description: The Epilepsy12 audit (National Clinical Audit of Seizures and Epilepsies for Children and Young People) uses data collected from hospitals and clinics to support quality improvement in paediatric epilepsy services
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Neurological Focus Pack Tool
Organisation: Public Health England
Type: Data tool
Date published: 2016
Description: Data on epilepsy prevalence, mortality rate, risk, hospital stays and more
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SUDEP research updates
Organisation: SUDEP Action
Type: Research
Date published: April 2023
Description: SUDEP Action regularly update their web pages with recent research into epilepsy. Visit this website for recent international publications.
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Training nurses in a competency framework to support adults with epilepsy and intellectual disability: the EpAID cluster RCT
Organisation: NHS England
Type: Research study
Date published: August 2019
Description: An economic analysis to determine if learning disability nurses, using a competency framework intervention for the management of epilepsy in adults with learning disabilities, can cost-effectively improve clinical and quality-of-life outcomes when compared with treatment as usual