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Who does what in LeDeR

Local integrated care boards (ICBs) are responsible for carrying out the LeDeR review. Before 2021, it was the clinical commissioning groups (CCGs) responsibility.

Local integrated care boards (ICBs) responsibilities:

  • help to improve the quality of services for people with a learning disability and autistic people
  • reduce health inequalities
  • reduce people with a learning disability and autistic people dying earlier than the general public. This is also called premature mortality

Because of the new policy, some of the roles and responsibilities in LeDeR have changed. Below is an outline of the key roles and changes.

National LeDeR team 

NHS England is the employer of the national LeDeR team.

The national LeDeR team responsibilities:

  • helps to support ICBs to complete LeDeR reviews
  • use the information to change and improve the way they provide services in their area
  • help systems to learn from one another about learning and good practice
  • make sure that there is an academic partner to support the programme
  • commission a web platform to help reviewers complete reviews

Regional coordinators 

We have 7 NHS England learning disability and autism teams across the country. A regional coordinator is part of each team and provides oversight for LeDeR.

Regional coordinators responsibilities:

  • provide operational support for local area contacts (LACs) and reviewer teams
  • support the LAC with any unresolved local issues

Local area contact (LAC) 

From 2021, the LAC role will sit in the ICB. There is now greater independence between the review team and the LAC.

The LACs responsibilities:

  • acts as the contact person for the regional coordinator
  • works with the review team
  • promotes LeDeR at a local level across health and social care

Reviewer teams

Review teams include reviewers and senior reviewers. The review teams’ responsibilities:

  • carry out LeDeR reviews in a professional, compassionate, and caring way
  • treat bereaved family members and loved ones with respect, compassion and courtesy
  • share their findings with the local governance group or panel

Other stakeholders

  • Local governance group and panel – this group sits at Integrated Care Board (ICB) level. It will complete the final sign off on reviews for that ICS area. The group will determine the actions to take and develop and monitor the ICB LeDeR local action plan
  • Independent advisory group – provides expertise and advice on premature mortality of people with a learning disability. The group recommends and provides the approach for implementing the actions from learning

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