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Resources

Resources and collateral that can be used by health and care professionals to facilitate discussions around end of life care.

Resources

  • COVID-19 Insight

    Organisation: Care Quality Commission (CQC)
    Type: Report
    Date published: 22nd June 2021
    Description: In this report, we look ahead to the publication of our provider collaboration review of how services across seven local areas in England have worked together for people with a learning disability during the COVID-19 pandemic.

  • Marie Curie – palliative care for people with a learning disability

    Organisation: Marie Curie
    Type: Resources
    Date published:
    Description: This guidance is for healthcare professionals on understanding a person’s needs and improving their quality of life in palliative care. They also have a series of easy read materials for people with a learning disability and carers caring for someone who is dying.

  • NICE: Support for adults with learning disabilities as they grow older - What to expect

    Organisation: National Institute for Health and Care Excellence (NICE)
    Type: Film
    Date published: April 2018
    Description: This advice says what care and support people with learning disabilities should have as they grow older.

  • Palliative and end of life care

    Organisation: NHS England
    Type: Website
    Date published: Accessed June 2023
    Description: Information from NHS England on palliative and end of life care

  • Palliative care for people with learning disabilities

    Organisation: Marie Curie
    Type: Guidance and links to resources which can be used with patients
    Date published: Jan 2022
    Description: Information for healthcare professionals on providing person-centred end of life care for someone with a learning disability.

  • Review of Do Not Attempt Cardiopulmonary Resuscitation decisions during the coronavirus (COVID-19) pandemic: our methodology

    Organisation: Care Quality Commission (CQC)
    Type: Public report into DNACPR
    Date published: Ongoing
    Description: Details about a special review of Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions taken during the COVID-19 pandemic including links to the interim report published in December 2020 which sets out the progress of the review so far and our expectations around DNACPR.

  • See Me - Andrew's Story

    Organisation: NHS/Mixit Theatre Group
    Type: Film
    Date published: August 2021
    Description: Andrew's story is a powerful awareness video, co-produced after a series incident in a hospital, to promote behavioural change around people with a learning disability. It's an important learning resource about reasonable adjustments and not making assumptions about people with a learning disability.

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