Resources
Resources and collateral that can be used by health and care professionals to facilitate discussions.
Resources
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Ask Listen Do – NHS England
Organisation: NHS England
Type: Guidance
Date published:
Description: This supports organisations to learn from, and improve the experiences of people with a learning disability and/or people who are autistic or both, and their families and carers when giving feedback, raising a concern or making a complaint. It also makes it easier for people, families and paid carers to give feedback, raise concerns and complain
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Autism and reasonable adjustments
Organisation: NHS
Type: Article
Date published: Dec 2021
Description: Article about the importance of recognising autism and making reasonable adjustments in physical healthcare settings
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Autism in General Practice
Organisation: Royal College of General Practitioners (RCGP)
Type: Online course
Date published: May 2021
Description: Online Course to improve the care GPs and their practice provide for patients with Autistic Spectrum Conditions (ASC)
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Breathing Techniques - NHS
Organisation: NHS Coventry and Warwickshire
Type: Film
Date published: 2014
Description: A short film about breathing techniques produced by Coventry and Warwickshire Partnership NHS Trust for people with a learning disability.
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Charlotte's Annual Health Check and Health Action Plan
Organisation: NHS England
Type: Film for adults/GPs
Date published: June 2022
Description: informative film presented by a GP about importance of Annual Health Checks and Health Action Plans. (Produced in June 2022)
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DanceSyndrome
Organisation: The National Learning Disability Nursing Forum
Type: Films
Date published: July 2022
Description: Supported by the national nursing directorate at NHS England and Improvement, DanceSyndrome has created a series of six informational videos which aim to demonstrate to healthcare professionals, including Midwives and Learning Disability Nurses, the many ways in which individuals with learning disabilities can live fulfilled lives, contributing to society and becoming visible leaders, performers and advocates.
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Dental care for people with special needs
Organisation: Oral Health Foundation
Type: Advisory
Date published:
Description: Information from the Oral Health Foundation includes guidance on helping someone with a learning disability to access dental care, oral care for people with a learning disability and information about common procedures. It also has a free and confidential helpline for advice: 01788 539780.
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DNACPR and people with a learning disability and/or autism
Organisation:
Type: Guidance
Date published: 04th March 2021
Description: NHS England guidance for ICS clinical leads, NHS Trusts, GPs, primary care nurses and others on the NHS Constitution regarding DNACPR directives.
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DNACPR Support Pack - Learning Disability England
Organisation: Learning Disability England
Type: Support Pack
Date published:
Description: This DNACPR support pack was developed by Turning Point and Learning Disability England to help patients, families and carers to understand DNACPR orders and raise any questions and concerns.
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Easy deep breathing/relaxation exercise
Organisation: Learning Disability CAMHS
Type: Film
Date published: July 2020
Description: A short video to support young people with a Learning Disability to learn an easy relaxation technique using deep breathing. It demonstrates a simple breathing exercise to induce calm when feeling upset, worried or anxious. This breathing exercise can also be used at any time to promote relaxation.
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Experiences of being in hospital for people with a learning disability and autistic people
Organisation: Care Quality Commission (CQC)
Type: Report
Date published: November 2022
Description: This report looks what people with a learning disability and autistic people experience when they need physical health care and treatment in hospital.
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Harshi's learning disability Annual Health Check and Health Action Plan
Organisation: NHS England
Type: Film for young people/GPs
Date published: August 2022
Description: informative film presented by a GP about importance of Annual Health Checks and Health Action Plans. (Produced in August 2022)
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Health Action Plans to support people with a learning disability
Organisation: Academic Health Science Networks
Type: Film
Date published: Oct 2021
Description: This video is for people with a learning disability on how Health Action Plans can benefit their care.
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Hydration
Organisation: NHS (Scotland)
Type: Guidance on good hydration
Date published: 2016
Description: Information about staying hydrated and signs and symptoms of dehydration - including a urine colour chart.
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Improving Health: Annual Health Checks
Organisation: NHS England
Type: Films and Guidance
Date published: June 2022
Description: Exemplars of AHCs, Films about their importance from people with lived experience, AHCs in secondary care pilot. Published June 2022
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Increasing the uptake of Annual Health Checks for people with a learning disability: videos for professionals
Organisation: NHS England
Type: Film
Date published: Oct 2021
Description: Various films for healthcare professionals working in primary care to increase knowledge of AHCs which should include a discussion on DNACPR directives.
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Increasing the uptake of Annual Health Checks for people with a learning disability: videos for professionals
Organisation: NHS England
Type: Films
Date published: Oct 2021
Description: Various films for healthcare professionals working in primary care to increase knowledge of AHCs which should include a discussion on epilepsy management, and medications.
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Intro to Annual Health Checks for people with a Learning Disability for carers and families
Organisation: AHSN Network
Type: Film
Date published: Oct 2021
Description: A video for carers and families who care for someone with a learning disability, to assist them on understanding more about annual health checks.
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Know Your Body
Organisation: Coppafeel! Orchid and others
Type: Accessible info packs, checking cards, stories and what d=to do if you notice changes
Date published: Nov 2022
Description: "Ansar Projects have created a series of accessible resources with Coppafeel! and Orchid to support people with a learning disability to know their body. The resources are the first of their kind and include accessible breast and testicular cancer information packs, self-checking cards, breast and testicular cancer symptom guides, self-checking social stories and information on what to expect if you notice a change."
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LeDeR Report 2021
Organisation: King's College London et al
Type: Annual Report
Date published: July 2022
Description: Annual LeDeR report into LeDeR reviews of deaths, produced by the following collaboration: KCL, UCLAN, KStGU
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LeDeR Resources, including Action from learning reports
Organisation: LeDeR/NHS England and NHS Improvement
Type: Annual Reports and resources
Date published: July 2022
Description: Annual Reports, Policy, Useful Links, and online tool for reporting the death of someone with a learning disability or an autistic person.
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My life with Epilepsy
Organisation: SUDEP Action/Speakup
Type: Toolkit and resources
Date published: March 2022
Description: A new project to create a toolkit of epilepsy risk information resources to support people living with a learning disability or autism who have epilepsy to reduce their risks.
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Networking, Membership and Events
Organisation: VODG - Voluntary Organisations Disability Group
Type: Membership organisation
Date published: Regular updates and lobbying
Description: A community of 135 organisations that support more than 1 million disabled people to live full independent lives.
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Networking, Membership and Events
Organisation: VODG - Voluntary Organisations Disability Group
Type: Membership organisation
Date published: Regular updates and lobbying
Description: A community of 135 organisations that support more than 1 million disabled people to live full independent lives.
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NHS England – Reasonable adjustments guidance and resources for clinicians and non-clinicians
Organisation: NHS England
Type: Resources
Date published:
Description: An explanation of reasonable adjustments, along with resources to support someone having a COVID-19 vaccination or booster
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NICE Impact: People with a Learning Disability
Organisation: NICE Impact Report
Type: Guidance
Date published: Nov 2021
Description: General guidance on working with people with a learning disability including the importance of Annual Health Checks which includes a discussion about epilepsy and is important for staying well
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Obesity, weight management and people with learning disabilities: Guidance
Organisation: Public Health England
Type: Guidance
Date published: Sept 2020
Description: This guidance is for public health staff commissioning or running weight management services and other mainstream health professionals working to support people to lose weight.
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Oral Health for people with a learning disability
Organisation: NHS/AHSN Network
Type: Film and guidance
Date published: October 2021
Description: This video is for carers of people with a learning disability to assist them manage oral health including discussing smoking, or mouth pain, or changed eating habits.
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Oral Health for people with a learning disability
Organisation: AHSN Network
Type: Film
Date published: Oct 2021
Description: This video is for people with a learning disability to assist them manage their oral health.
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Oral Health Foundation – Dental care for people with special needs
Organisation: Oral Health Foundation
Type: Guidance/Resources
Date published:
Description: Information from the Oral Health Foundation includes guidance on helping someone with a learning disability to access dental care, oral care for people with a learning disability and information about common procedures.
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PHE: Oral care and people with learning disabilities
Organisation: Public Health England
Type: Guidance
Date published: 6th March 2019
Description: Guidance to help health professionals, paid social care staff and family members to support someone with a learning disability to get good oral care.
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Reasonable Adjustments for people with a learning disability
Organisation: Public Health England
Type: Guidance
Date published: Jan 2020
Description: Guidance on the legal duties for clinicians and others on making reasonable adjustments for people with a learning disability under the law.
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Reasonable adjustments for people with a learning disability
Organisation: AHSN Network
Type: Film
Date published: Oct 2021
Description: This video is for healthcare professionals working in primary care, to understand more about reasonable adjustments and how they can support people with a learning disability to attend their annual health check.
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Recognising and managing deterioration
Organisation: NHS England
Type: Resources by setting - primary care, secondary care, ambulance services, mental health settings, social care.
Date published: Various/regularly updated
Description: Changes to vital signs, behaviour and mental state often occur before a serious event, such as cardiac arrest. Being able to recognise and act on these changes are essential skills to improving patient safety and outcomes.
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Recognising deterioration in people with a learning disability
Organisation: NHS
Type: Film
Date published: March 2020
Description: A lesson to help health and care workers understand how they could recognise deterioration and sepsis in patients with learning disabilities. Whilst aimed at care workers, this resource can be utilised by all learners to support their development.
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Review of Do Not Attempt Cardiopulmonary Resuscitation decisions during the coronavirus (COVID-19) pandemic: our methodology
Organisation: Care Quality Commission (CQC)
Type: Public report into DNACPR
Date published: Ongoing
Description: Details about a special review of Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions taken during the COVID-19 pandemic including links to the interim report published in December 2020 which sets out the progress of the review so far and our expectations around DNACPR.
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Royal College of Nursing: Learning Disability Nursing Library
Organisation: Royal College of Nursing
Type: Resource Library and sessions
Date published: Regularly Updated
Description: Learning disability nurses' links and resources on for the care and welfare of people with a learning disability or autism.
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See Me - Andrew's Story
Organisation: NHS/Mixit Theatre Group
Type: Film
Date published: August 2021
Description: Reasonable Adjustments: Andrew's story is a powerful awareness video, co-produced after a series incident in a hospital, to promote behavioural change around people with a learning disability. It's an important learning resource about reasonable adjustments and not making assumptions about people with a learning disability.
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Stay Well This Winter
Organisation: NHS England
Type: Guidance booklet
Date published: Winter 2022/23
Description: Easy read version of the Stay Well This Winter guidance, which includes guidance on staying warm, looking after your mental health, vaccinations and more
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STOMP – Stopping the over medication of people with a learning disability, autism or both
Organisation: NHS England
Type: Easy Read
Date published: February 2018
Description: An easy read leaflet explaining all about STOMP (Stopping the over medication of people with a learning disability, autism or both).
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Stop Smoking
Organisation: Macmillan Support
Type: Easy Read guide
Date published: August 2009
Description: An easy read booklet about smoking
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The Eat Well Guide
Organisation: NHS
Type: Guides for healthy eating
Date published:
Description: Information and guidance about eating a healthy, balanced diet.
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Use of reasonable adjustments to reduce health inequalities for people with a learning disability
Organisation: NHS England
Type: Films and Guidance
Date published: Jun 2022
Description: A film about Kareem and his mum Fazilla’s experience of reasonable adjustments and the difference it makes to them when reasonable adjustments are offered.
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Vaccines - Reasonable adjustments film
Organisation: NHS
Type: Reasonable Adjustments film
Date published: Dec 2022
Description: Students at Share Community Centre in Battersea get their combined Covid autumn booster and flu vaccinations. Steve Russell, National Director for Vaccination and Screening at NHS England talks to the GPs and nurses running the clinic to find out what reasonable adjustments were offered.